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Membership Emails

Below is a sample of the emails you can expect to receive when signed up to Trisomy.

SOFT 2020 Virtual Conference b...
2020 SOFT Virtual Conference D...

Hello SOFT Family:

Our first ever Virtual Conference begins today and there is still time for you to register to join us.

We are kicking off our week long webinar series today at noon CT.

Monday July 13th, 2020

12:00-1:00 Shining moments from the TRIS project: An overview and review of activities - Deborah A. Bruns, Ph.D

2:00-3:00 Perspectives on the Care of Children with Trisomy 18/13 - Dr. John Carey - Professionals Only

6:00-7:00 - Welcome to Conference & SOFT Annual Video

Click here for the full conference schedule and registration.

Three additional webinars have been added You can check out everything on our website. We have webinars and events for our SOFT families and members of all ages. In addition, Dr. Carey will be hosting a series of 3 webinars specifically for medical professionals. Please help by promoting this medical series to your child''s doctors.

Click here for the full schedule and registration.

Conference shirts are still available. Click here to check out the entire line!

Keep up to date with all the conference happenings either on the SOFT website or on the SOFT Facebook Page.

Thank you!
Your 2020 SOFT Virtual Conference Committee

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Support Organization for Trisomy 18, 13 and Related Disorders · 2982 S Union St · Rochester, NY 14624-1964 · USA

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Hello SOFT Family:

Any other year and we would be finalizing preparations to travel to the Annual SOFT Conference. As you know, due to the pandemic our annual conference was postponed until July 2021. Since we are unable to be together in person this year, SOFT is bringing the conference to you ~ virtually!

The 2020 SOFT Virtual Conference begins on July 13th and in preparation there are a couple of urgent deadlines you need to be aware of.

July 6th is the submission deadline for the following:

Submit a photo of your SOFT child (living or angel) for the SOFT Friends Video.
Submit your SOFT Angel''s name and photo to be included in the SOFT Candle Lighting Ceremony.

Click here to reach submission form.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Full Conference schedule and registration are now available. We have webinars and events for our SOFT families and members of all ages. In addition, Dr. Carey will be hosting a series of 3 webinars specifically for medical professionals. Please help by promoting this medical series to your child''s doctors.

Click here for the full schedule and registration.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Finally, we know what you are thinking. Is there a t-shirt for this year''s conference? Of course there is! Click here to see what we have!

Keep up to date with all the conference happenings either on the SOFT website or on the SOFT Facebook Page.

Thank you!
Your 2020 SOFT Virtual Conference Committee

Raw Data Registration Structure Registration Form Text

Registration

First

Home address

City

State

Postcode

Gender

Yes, I give permission to share my information with my State's Chapter Chair person and SOFT management.No, SOFT may not share my information with my State's Chapter Chair or SOFT managementWould you like to receive the SOFT Newsletter and Emails Blasts? If not, uncheck box. Be assured, SOFT will never share your email with others.

Yes I want to receive the SOFT Newsletter and Email Blasts Add Social MediaWould you like to display your social media accounts in our member directory so other members can find you?

Child's InformationExpectant Parent

Reason for Joining SOFT

I am looking for hope and support

I need more information about my child

I want to connect with other trisomy families

All of the above

Last Gender*

Male

Is Your Child Living?*

Yes

Need help converting weight and length? Convert kg to lbs Convert cm to in Vaccination and Surgery ReportingProviding vaccination and surgery information is optional but helps SOFT's data collection effort. Please note that certain questions apply only to cardiac surgeries.My Child Is/Was Up-to-Date with State Vaccine Recommendations

Yes

NoMy Child Received Annual Flu Vaccine

Yes

NoMy Child Received the Synagis Series for RSV Prevention

Yes

Data Name	Data Type	Options
First	Text Box
Email	Text Box
Home address	Text Box
City	Text Box
State	Text Box
Postcode	Text Box
Gender	Text Box
	tel
	dropdown
	dropdown
	dropdown
	checklist	Yes, I give permission to share my information with my State's Chapter Chair person and SOFT management.No, SOFT may not share my information with my State's Chapter Chair or SOFT managementWould you like to receive the SOFT Newsletter and Emails Blasts? If not, uncheck box. Be assured, SOFT will never share your email with others.
	checklist	Yes I want to receive the SOFT Newsletter and Email Blasts Add Social MediaWould you like to display your social media accounts in our member directory so other members can find you?
	url
	url
	url
	url
	checklist	Child's InformationExpectant Parent
	option	Reason for Joining SOFT
	option	I am looking for hope and support
	option	I need more information about my child
	option	I want to connect with other trisomy families
	option	All of the above
	option	Last Gender*
	option	Male
	dropdown
	option	Is Your Child Living?*
	option	Yes
	option	Need help converting weight and length? Convert kg to lbs Convert cm to in Vaccination and Surgery ReportingProviding vaccination and surgery information is optional but helps SOFT's data collection effort. Please note that certain questions apply only to cardiac surgeries.My Child Is/Was Up-to-Date with State Vaccine Recommendations
	option	Yes
	option	NoMy Child Received Annual Flu Vaccine
	option	Yes
	option	NoMy Child Received the Synagis Series for RSV Prevention
	option	Yes