Pheo Para Registration and Sign Up Information | pheopara

Pheo Para Sign Up Information

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7/3/2020 1

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Membership Emails

Below is a sample of the emails you can expect to receive when signed up to Pheo Para.

Calorie Burn Challenge starts ...
Research Update Webinar, 8/10...
I Have a Genetic Mutation, Now...
Calorie Burn Challenge Update!...
Giving Tuesday-THERE''S STILL ...
Pheo, Para & GIST Webinar...
Education Webinar & Awareness ...
Pheo Para Awareness Week...
Pheo Para Awareness Week...
Get a Jump on Giving Tuesday!...
Join us as an Agent of Change...
Mark Your Calendars!...
Last Chance for Year-End Donat...

It's ALMOST too late to join us!

PARTICIPANTS HAVE ALREADY SIGNED UP TO BURN 29,250 ACTIVE CALORIES! OUR GOAL IS 50K!

2,000 CALORIES - EASY PEASY

2,500 CALORIES - YOU GOT THIS...

3,250 CALORIES - HOW MANY CUPCAKES IS THIS GOOD FOR?!

4,500 CALORIES - NEXT LEVEL, CRAZY!

I DON''T WANT TO FEEL THE BURN (DONATE)

SAVE THE DATE!

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Hope on the Horizon

The Live Webinar Series is made possible through an educational grant by Progenics, and gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. You can see previously recorded webinars here.

Pheo Para Alliance / pheopara.org

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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November 11, 10PT/1ET

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Calories Committed - 19,250 out of 50K

PARTICIPANTS HAVE ALREADY SIGNED UP TO BURN 19,250 ACTIVE CALORIES! ONLY 30,750 MORE TO REACH OUR GOAL OF 50K!

2,000 CALORIES - EASY PEASY

2,500 CALORIES - YOU GOT THIS...

3,250 CALORIES - HOW MANY CUPCAKES IS THIS GOOD FOR?!

4,500 CALORIES - NEXT LEVEL, CRAZY!

Individual & team prizes for raising the most funds and burning the most calories!

MAKE A DONATION TO SUPPORT OUR PHRIENDS PARTICIPATING BELOW

I DON''T WANT TO FEEL THE BURN (DONATE)

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Support those struggling with pheo para

There''s Still Time To Participate in Giving Tuesday

Donate Today

How do donations help those affected by pheo para? Read these anecdotes from patients and caregivers.

William - I was recently diagnosed with para and am fascinated by all the information on Pheo Para Alliance website. Thanks for all you do.

Saundra - I remember my endocrinologist pulling up pheopara.org one day when she stopped by my room. She knew I needed that kind of support. That night I read so many of the stories of survivors until 2 am. I was inspired by their words of courage and hope.

Brenda - I just wanted to thank you and all doctors, for another fabulous webinar. I so enjoy all the the new exciting research and learning as I go through my disease that I am not alone.

Lisa - For me, Pheo Para Alliance was the sweet spot to educate myself in a sophisticated yet understandable way and really helped me advocate for my son’s care.

More of a numbers person? Check out our 2020 accomplishments here.

If Pheo Para Alliance has helped you through your journey, please donate today.

Donate Today

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Join Us, Wed., 8/26

Pheo, Para & GIST Webinar

Monthly Patient Hangouts

Join us for our monthly online Patient Hangout. Please join us as we share and connect about our pheo para journey. It takes place on the first Tuesday of the month at 4:30PT/7:30ET. Our topic for this meeting is Dealing With the Stress of Finding the Right Doctor and What to Look for in a Center of Excellence.

Awareness Week kicks off tomorrow! Learn how you can participate here!

Pheo Para Alliance / pheopara.org

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Join us tomorrow!

Patients

Caregivers/Loved Ones

Healthcare Providers

CALL TO ACTION!

We need you to share your experience by sending in a video by AUGUST 1, for our Awareness Week!

Click on the links below to learn how you can participate!

Special thanks to Progenics for joining our Pheo Para Awareness Week as Presenting Sponsor!

Click here to learn more about Awareness Week!

Pheo Para Alliance / pheopara.org

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Join Us and Be Pheo Para Phearless!

Today, August 23, we launch our inaugural Pheo Para Awareness Week. Join us as we hold this week-long campaign dedicated to raising awareness for pheochromocytoma and paraganglioma! Our theme is #pheoparaphearless.

We will share a video every day this week on Facebook, Twitter & Instagram featuring our patients and caregivers. Here is our Kickoff Video!

We need your help to make this campaign a success! Please participate by using the tools below.

Tag us @pheopara and use #pheoparaphearless & #(your state/country)

Social Media Cover, Announcement Post & Facebook Profile Frame

Tell Your Story – if you have already shared, then give an update!

Pheo Para Statistics – share these statistics on Facebook, Twitter or Instagram to share a stat about the illness.

Walk a Mile in My Shoes Memes – share these memes on Facebook, Twitter or Instagram to explain what having pheo para is like.

Printable Signage – download it, print it out, take a pic and share.

Zoom Background – Use during your online meetings.

Compilation Videos – Share the videos we release on Facebook, Twitter & Instagram during Awareness Week.

Press Release - Download and share with traditional media.

Donate

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Join Us August 23 - 29!

#WeArePheoParaPhearless

Dear Pheo Para Phriends,

On Sunday, August 23, we will launch our inaugural Pheo Para Awareness Week. We need your help to make this campaign a success! Please participate by using the tools below.

Tag us @pheopara and use #pheoparaphearless & #(your state/country)

Social Media Cover, Announcement Post & Facebook Profile Frame

Tell Your Story – if you have already shared, then give an update!

Pheo Para Statistics – share these statistics on Facebook, Twitter or Instagram to share a stat about the illness.

Walk a Mile in My Shoes Memes – share these memes on Facebook, Twitter or Instagram to explain what having pheo para is like.

Printable Signage – download it, print it out, take a pic and share.

Zoom Background – Use during your online meetings.

Compilation Videos – Share the videos we release on Facebook, Twitter & Instagram during Awareness Week.

Press Release - Download and share with traditional media.

Thank you to everyone for participating in this very important inaugural event. We are #strongerunited and #pheoparaphearless! Don’t hesitate to reach out with questions or suggestions to info@pheopara.org.

Warmest Regards,

Your Pheo Para Phamily

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Receive a Pheo Para Phearless Mask!

Donate BEFORE Giving Tuesday to receive a pheo para phearless face mask and sticker!

Donate Today

Giving Tuesday is December 1st, but make a donation before then to receive a pheo para phearless mask and sticker!

To see how your donations are put to work, check out what we have accomplished TOGETHER this year.

Join our mission today by clicking on the donate button below.

Don''t forget to include your mailing address.

Donate Today

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Donate Today

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Dear Phriends,

I have one word to describe the pheo para community in 2020, RESILIENT. Despite the pandemic, our pheo para phriends and phamily regrouped, strategized, and continued to move our mission forward to empower patients with pheochromocytoma or paraganglioma, their families and medical professionals through advocacy, education and a global community of support, while supporting the advancement of research.

Instead of focusing on what we were not able to accomplish this year, I would like to highlight some of our amazing achievements. Many of these were only possible because of the pandemic, a silver lining amongst a terrible situation.

To help us plan for next year, I invite you to participate in our mission by making a year-end donation. You can do so by sending a check to: Pheo Para Alliance, 9721 Whitley Park Place, Bethesda, MD 20814, or donating online.

On behalf of the Board of Directors, patients and caregivers, thank you for your support. We look forward to an amazing 2021 filled with even more help and hope for those affected by pheo para.

Sincerely,

Executive Director

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Pheo Para Alliance | www.pheopara.org

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Pheo Para Alliance | 9721 Whitley Park Place, Bethesda, MD 20814

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Genetics Webinar, Peer Support Mtg, Get Creative & Pilates Classes

MARK YOUR CALENDARS!

Education Webinar

Addressing Family Dynamics Associated with Genetic Mutations

Wednesday, 1/13

10 am PT/1 pm ET

Monthly Peer Support Meeting

Effectively Communicating with Healthcare Providers

Saturday, January 9

10 am PT/ 1 pm ET

Get Creative with Cait

Reduce Anxiety, Connect With Patients & Have Fun!

Sunday, 1/13

11 am PT/2 pm ET

Free to attend / donations are appreciated

Join us on Insta Live

Beginner Pilates for Patients

Chandra, Hosts a Low-Impact Class to Improve Flexibility & Muscular Strength.

Saturday, 1/23

10 am PT/ 1 pm ET

$15 early bird registration fee

CENTER OF EXCELLENCE LAUNCHES

The application period is open for interested healthcare institutions to apply for a designation from the recently launched Center of Excellence program. The program will provide an environment where patients receive the best possible pheo and para care through a geographically diverse network of clinical centers.

If you know of a center that provides exemplary care, please share this information with them.